I'm here at Roswell for my first treatment of TL32711. Really. Look it up. Ken and I got here at 6:30 am. Ugh. We began our day with blood work. Then, blood pressure readings laying down, sitting, and standing up. This was followed by an EKG. About an hour later, we were moved to a room with a bed for me and a comfy chair for Ken. They accessed my mediport for future blood draws, then put in an IV in my other arm because the protocol doesn't allow them to take blood from the same side as the infusion. (otherwise they would have used the mediport for both.) As it turned out, the nurse wasn't getting a very good blood return from my mediport, so she had to use my arm anyway. Holy cow! I have tubes everywhere! So, the routine goes like this: Every 15 minutes, they have to take my blood pressure, oxygen level and temperature with me laying down. So, the nurse comes in 5 minutes before to make sure I'm laying flat, then comes in 5 minutes later to take my readings and draw blood. 10 minutes later, we do it all again. Then, for added fun, we add an EKG in the mix. Somewhere in there, the actual infusion took place. It took all of 30 minutes. I have another 4 or 5 hours of tubes, blood pressure cuffs, EKG sticky things, and blood draws. Then it's home to my favorite chair and Tucker (our Siamese cat).
I can do this once a week. It's not so bad. In time, the days won't be so long. As long as I can go about living my life every other day but Tuesday, I'm happy. Life is good.
Let us know what you need, ok? You can pass it on through Sharon if that's easier. Good luck with your treatments and keep up the great attitude!
ReplyDeleteWell, you'll have to post what happened after this post when you feel better. I'm so sorry you had such a rough time and barfed all over Amherst and Buffalo on the way home. Good news is that it has nothing to do with the new drug! Hang in there Seester, rest and stay home from work! We love you!
ReplyDeleteMany times the best thing to do is let the current of the river take us where it wants...dispite any rocks we might hit. Better to do that than the fight so hard that we drown!
ReplyDeleteNext time you have to roll with the tide, think about what you'd love to do when you get out.
...and mind all the mispellings...it's 4:30...you know. My head is not in working mode anymore...
ReplyDeleteThinking of you all the time. How is Ken? I heard late last night. Let me know what we can do...
ReplyDeleteYou are one amazing woman! I love how positive you are through all of this yucky-ness. You looked beautiful today!
ReplyDeleteI have to tell you, I had to go to the dentist today to discuss the possibility of more extensive work. I went through so much anxiety this morning...not able to accomplish anything at home...really!! Then, I thought of you, dear Chris, and I was ashamed of myself and knew I could handle this, "babyfood", in comparison! Thank you Chris.
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